Quarkside

13/10/2010

Snoop on your doctor?

Filed under: Governance,Innovation,Privacy — lenand @ 7:29 am

As reported by Bryan Glick, the NHS is continuing with Summary Care Records (SCR).  He notes that, “Controversially, SCR has been made an opt-in service, which assumes all patients want an SCR record created unless they tell their GP otherwise. More than 30 million people have been written to already, and opt-out rates have so far been negligible, but critics have said the letters did not adequately explain the process.

Opting-in should be everybody’s right with any system which even stores highly personal data, let alone shares it with a potentially huge number of unspecified parties.  It should not be controversial, people should be allowed to balance their own risks.

I would also add, for those people who opt-in, that they should be sent a record of each person who has accessed their record.  A monthly or annual summary should not be too difficult to send to people who opt-in to an email.  A web based service is also a possibility, but imagine the problems of agreeing credentials.  There is room for innovation.

Perhaps it won’t happen because this would also show when clinicians did NOT look at an SCR when they should have done so.

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